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Making Treatment Decisions

Cancer Resources

These resources may be helpful to patients, families, survivors and others with an interest in cancer treatment, support services, and research. Find a resource by category:

General/Financial

General Information/Support 
International/Cultural Support 
Prescription Assistance - General
Prescription Assistance - Drug company-specific
Travel Assistance

Disease-Specific

Bladder Cancer 
Blood and Marrow Transplant 
Brain Tumor 
Breast Cancer 
Carcinoid Cancer/Neuroendocrine Tumors 
Childhood Cancers 
Colon Cancers
Gynecologic Cancers
Head and Neck Cancer
Kidney Cancer
Leukemia and Lymphoma
Liver Cancer 
Lung Cancer
Myelodysplastic Syndromes 
Myeloma
Pancreatic Cancer
Prostate Cancer 
Sarcomas/GIST
Skin Cancer
Thyroid Cancer 

 

General Information/Support

4women.com Inc.
American Associations for Cancer Research: The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research.  The mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration.  215.440.9300 or toll free 866.423.3965

American Cancer Society (ACS): An extensive network of information resources and organizations fighting cancer by providing information, education, support and research funding. 800.ACS.2345

American Society of Clinical Oncology (ASCO): A non-profit organization, ASCO supports cancer research, especially patient-oriented clinical research. Membership is composed of clinical oncologists from all oncology disciplines and sub-specialties. 703.299.0150

Association of Cancer Online Resources (ACOR ): An internet-based public charity dedicated to improve the quality of care provided to patients with cancer and the quality of life of patients, survivors and their caregivers. 212.226.5525

Association of Community Cancer Centers (ACCC)

Bone and Cancer Foundation:A resource for patients and health professionals concerned with the care and treatment of cancer involving bone. They provide information for cancer patients and family members on the causes and treatment of cancer involving bone. 212.509.5188 or Toll free 888.862.0999

Cancer Care: A non-profit, voluntary health agency devoted to education, research, and patient services relating to cancer patients and their families. The organization's programs include individual and group counseling for patients and their families, bereavement services, financial assistance, and education programs. 800.813.HOPE

Cancer Hope Network: Provides free, confidential, one-on-one support to people with cancer and their families. The program is available to all cancer patients and their loved ones from anywhere in the United States at no cost. 877.HOPENET

Cancer.net: The patient information website of the American Society of Clinical Oncology (ASCO) is designed to help patients and families make informed health care decisions. The site provides information on more than 120 types of cancer and cancer-related syndromes, clinical trials, coping, side effects, a "Find an Oncologist" database, message boards, patient support organizations, and more. (English and Spanish)

Cancer Support Community: Uniting The Wellness Community and Gilda’s Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer. 888.793.9355  

Cancersymptoms.org:This website is sponsored by the Oncology Nursing Society (ONS).  It is designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptoms that patients undergoing treatment for a cancer diagnosis commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction.

Caring4Cancer: This web-based resource serves as a complete source of knowledge and support for people with cancer, empowering them with the expertise, strength and hope they need to live their lives to the fullest. Caring4Cancer combines a virtual encyclopedia of cancer information with a collection of powerful tools (including videos, message boards, and e-newsletters) that help patients take an active role in managing their disease.

CURE: Cancer Updates, Research & Education is a unique quarterly magazine bridging the knowledge gap between cancer patients and caregivers. CURE demystifies the science and medicine of cancer and gives readers links to important resources on the web and in the medical community. CURE provides readers the tools they need to take action, such as participating in clinical trials of new drugs that could mean the difference between life and death. CURE was created by Cancer Information Group, LP, a physician-managed publishing company. 214.367.3500; Toll Free: 800.210.CURE (2872)

Fertile Hope: A national non-profit organization dedicated to providing reproductive information, support, and hope to cancer patients whose medical treatments present the risk of infertility. 888.994.HOPE

Lance Armstrong Foundation (LAF): A registered 501(c)(3) non-profit organization located in Austin, Texas. Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF inspires and empowers people with cancer. 512.236.8820

MyBiopsy.org: Patient oriented website developed by the College of American Pathologists (CAP) which features information on more than 20 of the most common cancers and cancer-related conditions. It includes answers to questions about what the disease is, what treatment options are available, questions you should ask your doctors, a definition of key terms, and pictures of a normal tissue as well as one that is diseased.

MyOncofertility.org: This website helps patients to learn more about the potential effect of cancer (and other serious diseases) and treatments on their fertility, as well as the options for preserving fertility and resources for discussing these issues with their doctor.

National Cancer Institute (NCI): Conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer. It also includes information on rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. 800.4.CANCER

National Center for Complementary and Alternative Medicine: One of the 27 institutes and centers that make up the National Institutes of Health (NIH). It is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. United States: 888.644.6226. International: 301.519.3153

National Coalition For Cancer Survivorship (NCCS): A non-profit national advocacy organization, NCCS is a nationwide network of independent organizations and individuals working in the areas of cancer support, education, and advocacy. 877.NCCS.YES

National Hospice and Palliative Care Organization (NHPCO): NHPCO is the largest non-profit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing the quality of life for people dying in America and their loved ones. (Spanish/English) 800.658.8898

National Lymphedema Network (NLN): An internationally recognized non-profit organization providing education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema. The NLN also supports research into the causes of and possible alternative treatments for lymphedema. 800.541.3259

National Organization for Rare Diseases (NORD): A non-profit voluntary health organization dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. 800.999.NORD

National Society of Genetic Counselors: An organization which promotes the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. Genetic Counselors can be searched by State, City, Counselor's Name, Institution or Areas of Practice or Specialization. Cancer genetic counselors are involved with individuals who have cancer or a family history of cancer.  nsgc@nsgc.org    

NexProfiler Treatment Option Tools: These tools are offered through the American Cancer Society to help patient make informed decisions about treatment. Patients can access the detailed analysis of specific conditions, view a statistical breakdown of treatment types, and pinpoint topics to discuss with their doctors.

Patient Advocate Foundation: The Patient Advocate Foundation is a national non-profit organization that serves as an active liaison between patients and their insurers, employers and/or creditors to resolve insurance, job discrimination, and/or debt crisis matters related to their diagnosis. It seeks to safeguard patients through effective mediation, assuring access to care, maintenance of employment, and preservation of financial stability. 800.532.5274

Pregnant with Cancer Network: The Pregnant with Cancer Network is a national non-profit organization for women diagnosed with cancer during pregnancy.  Their  mission is to connect women who are pregnant with cancer with other women who have been pregnant with the same type of cancer.  These women lend support, offer hope and share their experiences with one another through phone and e-mail conversation. 800.743.4471

Prevent Cancer Foundation: A national, non-profit health foundation whose mission is the prevention and early detection of cancer through scientific research, education and community outreach. The Foundation focuses its energies and resources on those cancers—including lung, breast, prostate, colorectal, cervical, skin, oral and testicular—that can be prevented through lifestyle changes or detection and treatment in their early stages. 800.227.2732

The Cancer Project: The Cancer Project is a non-profit organization advancing cancer prevention and survival through nutrition education and research. 202.244.5038

 

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International/Cultural Support Groups 

American Cancer Society (ACS) Asian Language Materials: American Cancer Society site that provides resources and cancer information in several Asian languages including Chinese, Korean, and Vietnamese.

Canadian Cancer Society: A national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer. 416.961.7223

Intercultural Cancer Council (ICC): Promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories. 713.798.4617

International Union Against Cancer (UICC): UICC is an international non-profit, nonsectarian, nongovernmental association of more than 290 member organizations in 85 countries. Their mission is to advance scientific and medical knowledge in research, diagnosis, treatment, and prevention of cancer throughout the world, especially professional and public education. +41 22 809 18 11

Make-A-Wish Foundation International: A not-for-profit organization established to grant wishes to children with life-threatening illnesses around the world. The Make-A-Wish Foundation can now be found in 30 countries and territories around the world. 602.230.9900

National Asian Women's Health Organization (NAWHO): NAWHO helps to raise awareness about the health needs of Asian Americans through research and education. They have health education programs for breast, cervical cancers, and reproductive health. 415.989.9747

Vital Options International: A non-profit cancer communications, support, and advocacy organization with a mission to facilitate a global cancer dialogue.  It produces a weekly cancer talk radio show called The Group Room®,  which allows callers to engage directly with noted oncology professionals from the US and Europe, as well as with advocates and other patients.  Program information can be found on the Vital Options’ websites which provides easy access for visitors to listen to archived shows, locate national and international cancer resources and organizations, information on clinical trials, cancer news, a message board, as well as special content for young adults with cancer (English, French, German) www.thegrouproom.tv; www.youngadultswithcancer.org

World Health Organization (WHO): A specialized agency of the United Nations with 191 Member States, WHO promotes technical cooperation for health among nations, carries out programs to control and eradicate disease, and strives to improve the quality of human life. + 41 22 791 21 11

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Prescription Assistance - General

Co-Pay Relief 

NeedyMeds: This non-profit organization provides help to patients who cannot afford medicine or health care costs. Its website enables you to search by generic or brand name drug names, program name, or drug company name. NeedyMeds also provides access to numerous cancer-based assistance programs, some of which may provide financial assistance.

Partnership for Prescription Assistance: The Partnership for Prescription Assistance brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. Among the organizations collaborating on this program are the American Academy of Family Physicians, the American Autoimmune Related Diseases Association, the Lupus Foundation of America, the NAACP, the National Alliance for Hispanic Health and the National Medical Association.  888.4PPA.NOW

Rx Assist: This pharmaceutical access information center was created by Volunteers in Health Care (VIH), a national resource center for safety net organizations. VIH operates out of the Brown University Center for Primary Care and Prevention at Memorial Hospital of Rhode Island.

Rx Outreach 

Xubex

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Prescription Assistance - Drug company-specific

Abraxis BioScience, LLC 

AZ Medicine and Me 

Bristol-Myers Squibb Destination AccessTM  

Celgene Patient Support 

ESA APPRISE Oncology Program (Amgen Inc. and Centocor Ortho Biotech Products, L.P.) 

Eisai Reimbursement Resources 

GSK Access 

Lilly Medicare Answers 

Pfizer Helpful Answers®

TheraSphere Reimbursement Services – MDS Nordion 

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Travel Assistance

Air Charity Network: A non-profit grassroots organization with a volunteer corps of more than 7,500 private pilots divided into six regions covering all 50 states and the District of Columbia. They transport patients and their families in private planes, free of charge, to hospitals for medical treatment. (United States Only) 877.621.7177

Corporate Angel Network: Provides free air transportation for cancer patients traveling to and from recognized cancer treatment centers in the United States without regard to their financial resources. 914.328.1313; Toll Free: 866.328.1313

Joe's House: Joe’s House is a non-profit organization that serves both the hospital staff and cancer patients that travel for their healthcare needs.  Founded in 2003, Joe’s House assists in finding appropriate lodging in unfamiliar cities by providing a list of accommodations that cater to patients with cancer, their families, and caregivers.

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Bladder Cancer

American Urological Association Foundation (AUA): The AUA Foundation is the nation's leading urologic health charity that promotes research, education and advocacy. Their mission is to improve prevention, detection, treatment and ultimately, cure urologic diseases. 410.689.3700 or  866.746.4282 (Toll Free U.S. only)

Bladder Cancer Advocacy Network (BCAN): The first national advocacy organization dedicated to improving public awareness of bladder cancer, and increasing research directed towards the diagnosis, treatment and cure of the disease. Founded in May 2005, BCAN is a cooperative effort among bladder cancer survivors, their families, caregivers, and the medical community. One of their goals is that no one should ever have to feel alone when dealing with bladder cancer. 301.469.6865

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Blood and Marrow Transplant

Blood and Marrow Transplant Information Network: A non-profit organization that provides publications and support services to bone marrow, peripheral blood stem cell, and cord blood transplant patients and survivors. All literature is written in lay language and reviewed for accuracy by a team of medical experts from transplant centers throughout the United States and Canada. 888.597.7674

National Marrow Donor Program: A non-profit organization which facilitates unrelated donor stem cell transplants for patients of all racial and socioeconomic backgrounds with life-threatening blood diseases who do not have matching donors in their families. Provides advice, support, and access to resources and information throughout the search process, coordinates research studies, and provides one-on-one advocacy for patients and medical professionals. Donors and other inquiries: 800.MARROW.2; Patients and families: 888.999.6743; International: 612.627.8140

National Transplant Assistance Funds: The mission of NTAF is to help transplant and catastrophic injury patients afford critical but uninsured medically related expenses through fundraising guidance, patient support and resources, as well as financial assistance. 899.642.8399 

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Brain Tumor

American Brain Tumor Association: A non-profit organization dedicated to eliminating brain tumors by funding and encouraging research. Provides educational materials and information to patients, their families, and medical professionals. 800.886.2282

National Brain Tumor Society: A non-profit organization that provides leadership within the brain tumor community and strives to improve the quality of life for those affected by brain tumors. NBTS provides educational materials and information to patients, their families, and medical professionals. 800-934-2873

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Breast Cancer

Breast Cancer Research Foundation (BCRF): An independent 501(c)(3) not-for-profit organization whose mission is to achieve prevention and a cure for breast cancer by providing critical funding for innovative clinical and genetic research at leading medical centers worldwide, and increasing public awareness about good breast health. 646.497.2600

Breastcancer.org: A non-profit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. They help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives.

Breast Cancer Network of Strength: Breast Cancer Network of Strength™, formerly known as Y-ME National Breast Cancer Organization®, provides help, information, and education about breast cancer free of charge every day of the year on a 24-hour basis to anyone who has been touched by breast cancer. Their comprehensive breast cancer peer support program includes trained counselors, real-time interpreters available in more than 150 languages for telephone conversations; match programs, support via e-mail; the ShareRing Network, a monthly, one-hour teleconference; and survivor-facilitated support groups. English: 800.221.2141; Spanish: 800.986.9505
 
Facing Our Risk of Cancer Empowered (FORCE): A non-profit organization that provides resources and information for women with increased risk of breast and ovarian cancers, due to a family history and/or genetic status. FORCE is also a resource for members of families in which a BRCA mutation may be present. 866.824.RISK

Inflammatory Breast Cancer Research Foundation: A web-based organization dedicated to researching the cause of Inflammatory Breast Cancer (IBC), an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds. They provide e-mail discussion lists, an e-newsletter, volunteers who answer questions submitted to the website, articles, research information, videos, presentations, and inspirational stories on IBC.

Living Beyond Breast Cancer (LBBC): LBBC assists women at all stages of breast cancer diagnosis, treatment and recovery. Their mission includes offering specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing the disease, and African-American and Latina women.  Programs for caregivers and healthcare professionals are also available to help them better meet the needs of women affected by breast cancer.  484-708-1550 or Survivor’s helpline: 888.753.LBBC (5222)

National Breast Cancer Coalition: A grassroots advocacy organization consisting of more than 500 organizations and over 60,000 individuals from across the United States, dedicated to fighting breast cancer. Informs, trains, and directs patients and supporters in knowledgeable and effective advocacy efforts. 202.296.7477

Sisters Network, Inc.: A non-profit African-American breast cancer survivors’ organization. It promotes the importance of breast health through personal empowerment, support, breast education programs, resources, information, and research through its strong affiliate chapter base. 866.781.1808

Susan G. Komen Breast Cancer Foundation: The nation's largest private foundation dedicated solely to breast cancer research, education, screening, and treatment. 800.I’M AWARE

WomenStories: An organization that inspires, informs and supports breast cancer patients by documenting and sharing survivors' experiences. Through a series of ten psychosocial videos, breast cancer survivors offer emotional support and advice that women need and value. The videos may be viewed as well as purchased on their site. 800.775.5790

Young Survival Coalition (YSC):  The only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer. 877.YSC.1011

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Carcinoid Cancer/Neuroendocrine Tumors

Carcinoid Cancer Foundation, Inc.:  The mission of this foundation is to conduct, encourage and support research and to educate the general public and health care professionals regarding carcinoid and related neuroendocrine tumors. 888.722.3132

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Childhood Cancers

Candlelighter’s Childhood Cancer Foundation (CCCF): CCCF, founded in 1970 by concerned parents of children with cancer to assist families and survivors of childhood cancer, has a network of parent support groups in the United States and on every continent. 800.366.2223

Children's Cause Cancer Advocacy (CCCA): A 501(c)3 non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors. 301.562.2765

CureSearch.org: Web site based on the combined efforts of the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF), dedicated to research, advocacy, and fundraising for childhood cancers. United States and Canada: 800.458.6223

I’m a Kid Foundation: A non-profit organization devoted to supporting children with medically related hair loss due to cancer, alopecia, AIDS, or other ailments.  702.269.5437

Make-a-Wish Foundation: A non-profit organization dedicated to granting the wishes of children with life threatening medical conditions. 800.722.WISH

National Children’s Cancer Society (NCCS):  The mission of NCCS is to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education. 800.5.FAMILY

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Colon Cancers

Colon Cancer Alliance (CCA): A non-profit organization of colon and rectal cancer survivors, their families, caregivers, people genetically predisposed to the disease, and the medical community dedicated to patient support, advocacy, and education. Helpline: 877.422.2030

C3: Colorectal Cancer Coalition:  A national organization whose mission is to eliminate suffering and death due to colon and rectal cancer through advocacy. C3 pushes for research to improve screening, diagnosis, and treatment of colorectal cancer; for policy decisions that make the most effective colon and rectal cancer prevention and treatment available to all; and for increased awareness that colorectal cancer is preventable, treatable, and beatable. 703.548.1225

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Gynecologic Cancers

Facing Our Risk of Cancer Empowered (FORCE): A non-profit organization that provides resources and information for women with increased risk of breast and ovarian cancers, due to a family history and/or genetic status. FORCE is also a resource for members of families in which a BRCA mutation may be present. 866.824.RISK

National Cervical Cancer Coalition: An advocacy group dedicated to educating the public about cervical cancer prevention and outreach, new screening and treatment options, cervical cancer screening and follow-up programs, HPV, the limitations of the Pap smear AND its overwhelming success as a screening tool for clinicians. 800.685.5531

National Ovarian Cancer Coalition: Grassroots advocacy organization formed to raise awareness about ovarian cancer and to promote education about this disease. 888.OVARIAN

Ovarian Cancer National Alliance: A patient-led organization uniting ovarian cancer activists, women's health advocates and health care professionals in the effort to increase public and professional understanding of ovarian cancer and to advocate for more effective diagnostics, treatments and a cure. 202.331.1332

Women's Cancer Network Web Site: This premiere site, developed by the Gynecologic Cancer Foundation, offers a confidential risk assessment and comprehensive cancer information for lay public and survivors.

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Head and Neck Cancer

Head and Neck Cancer Alliance (HNCA): Formerly the Yul Brynner Head and Neck Cancer Foundation, HNCA expands on existing strengths to enhance the overall effort in prevention, detection, treatment, and rehabilitation.  HNCA seeks to provide support to head and neck cancer patients, support ongoing research in head and neck oncology, and educate children and adults in the disease process, treatment and prevention of head and neck cancer.  843.792.6624
 
Oral Cancer Foundation: A non-profit advocacy organization that seeks to increase public and professional awareness of oral cancers. They promote lifestyle changes, early detection initiatives, education, improved treatment modalities, and provide a survivor/patient forum for the support of those patients and their families currently fighting this disease. 949.646.8000

Support for People with Oral and Head and Neck Cancer (SPOHNC): SPOHNC is a patient-directed, self-help organization dedicated to meeting the needs of patients with oral and head and neck cancers. Offers information, support, and encouragement. 516.759.5333 or 800.377.0928.

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Kidney Cancer

American Urological Association Foundation (AUA): The AUA Foundation is the nation's leading urologic health charity that promotes research, education and advocacy. Their mission is to improve prevention, detection, treatment and ultimately, cure urologic diseases. 410.689.3700 or  866.746.4282 (Toll Free U.S. only)

Kidney Cancer Association (KCA): KCA is a national non-profit membership organization made up of patients, family members, physicians, researchers, and other health professionals which offers a broad range of services, including advocacy on behalf of patients, support of both public and private research, information, and education. 800.850.9132

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Leukemia and Lymphoma

Leukemia and Lymphoma Society: Provides information, support, and guidance to persons living with leukemia, lymphoma, Hodgkin's disease, myeloma, and other blood-related cancers and to those involved in their care. 800.955.4LSA

Lymphoma Research Foundation (LRF): LRF creates, promotes, and supports lymphoma research and provides comprehensive educational and supportive programs for lymphoma patients and their families. 800.500.9976

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Liver Cancer

American Liver Foundation:  The American Liver Foundation (ALF)'s mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. ALF makes a measurable difference in the fight against liver disease by providing research awards for medical research, education programs for medical professionals, and education programs and information, support services, and advocacy for patients and their families. The American Liver Foundation has 16 Divisions across the United States, serving individuals from all 50 states. 1-800-GO-LIVER. 

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Lung Cancer

American Lung Association (ALA): The oldest voluntary health organization in the United States, with a national office and constituent and affiliate associations around the country. Founded in 1904 to fight tuberculosis, ALA today fights lung disease in all its forms, with a special emphasis on asthma, tobacco control, and environmental health. 800.LUNG.USA

Lung Cancer Alliance:A non-profit organization dedicated to people living with lung cancer and improving the quality of their lives through advocacy, support, and education. (United States only) 800.298.2436

Lung Cancer Online Foundation (LCOF): The mission of The Lung Cancer Online Foundation (LCOF) is to improve the quality of care and quality of life for people with lung cancer by funding lung cancer research and providing information to patients and families.

National Lung Cancer Partnership: A non-profit organization dedicated to decreasing deaths due to lung cancer, and helping patients live longer and better, through research, awareness and advocacy. It is comprised of leading physicians, patient advocates, researchers, and lung cancer survivors.  The organization is ultimately working to advance lung cancer treatments for all patients, but currently, its efforts are focused on women. 608.233.7905

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Myelodysplastic Syndromes

The MDS Foundation: A multi-disciplinary international organization devoted to the prevention, treatment and study of myelodysplastic syndromes. This network provides patients with referrals to Centers of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to both physicians and patients. 800.MDS.0839.

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Myeloma

International Myeloma Foundation (IMF): IMF, a non-profit organization, is dedicated to education, treatment, and research in multiple myeloma. United States and Canada: 800.452.CURE. International: 818.487.7455

Multiple Myeloma Research Foundation (MMRF): International non-profit foundation founded in 1998 with the mission of accelerating the search for a cure for multiple myeloma. Today, the MMRF is the number one private funder of myeloma-specific research and offers educational programs to patients and professionals worldwide. 203.972.1250

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Pancreatic Cancer

The Lustgarten Foundation for Pancreatic Cancer Research: The mission of The Lustgarten Foundation is to advance the scientific and medical research related to the diagnosis, treatment, cure and prevention of pancreatic cancer. 866.789.1000 

Pancreatica.org: The purpose of this site is to serve as a worldwide gathering point on the internet for the latest news in regards to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Additionally, their aim is to present impartial knowledge about pancreatic cancer where interested parties can sort through a large amount of information efficiently in order to give a sense of the range of existing treatment options, to aid patient/doctor partnerships, and thus to help optimize personal treatment strategies.

Pancreatic Cancer Action Network (PanCAN): The Pancreatic Cancer Action Network (PanCAN) works to focus national attention on the need to find the cure for pancreatic cancer. PanCAN provides public and professional education that embraces the urgent need for more research, effective treatments, prevention programs, and early detection methods. PanCAN is the first national patient-based advocacy organization specifically focused on pancreatic cancer. 877.272.6226

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Prostate Cancer

Alliance for Prostate Cancer Prevention: APCaP’s mission is to bring public and private business leaders, legislators, health providers and administrators, researchers, federal, state and local health officials, and prostate cancer advocates into a coordinated cohesive forum to enhance and promote prostate cancer awareness, education, research and primary and secondary prevention programs. It has been created to support efforts to prevent the serious consequences of the disease itself for men who have not been diagnosed and are unaware of the deadly effects of prostate cancer.  888.50.APCAP or E-mail: info@apcap.org

American Urological Association Foundation (AUA): The AUA Foundation is the nation's leading urologic health charity that promotes research, education and advocacy. Their mission is to improve prevention, detection, treatment and ultimately, cure urologic diseases. 410.689.3700 or  866.746.4282 (Toll Free U.S. only)

Prostate Cancer Foundation: A non-profit public charity dedicated to finding cures and controls for prostate cancer and the world's largest private source of prostate cancer research funding. 800.757.CURE

PSA Rising: Prostate cancer news internet magazine which reports on prostate cancer treatments and research and maintains a forum for advocacy and grass-roots activism.

US-TOO! International, Inc.: An independent network of support group chapters for men with prostate cancer and their families. Offers fellowship, peer counseling, education about treatment options, discussion of medical alternatives without bias and increases public awareness of prostate disease. 800.80.USTOO

ZERO The Project to End Prostate Cancer: Zero is a non-profit public charity dedicated to finding cures and controls for prostate cancer.  It is also the world's largest private source of prostate cancer research funding. 800-757-CURE 

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Sarcomas/GIST

GIST Support International (GSI): An all-volunteer, non-profit organization that reaches out to GIST patients and their families and friends to provide education and support. GSI promotes and encourages ongoing research in the quest for a cure for Gastrointestinal Stromal Tumor (GIST). 215.340.9374

Sarcoma Alliance: An advocacy organization that provides support, education, and guidance for patients/family members with sarcoma. Also provides patient materials, web links, support group locations, and other resources. 415.381.7236

Sarcoma Foundation of America: This foundation serves as an advocate for increased research to find new and better therapies to treat sarcoma patients.  It provides information and support to sarcoma patients and their families. 301-253-8687. 

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Skin Cancer

Aim at Melanoma: Aim at Melanoma is the largest international melanoma organization focused on research, education, awareness, and legislation.  Its mission is to provide comprehensive online melanoma information for patients and caregivers, support melanoma research, and promote prevention and education among the general public and medical professionals. The website also provides the following resources: "Nurse on Call" hotline, discussion board, breaking news, and a clinical trials matching service. Nurse on Call Service: 877-246-2635

American Academy of Dermatology: A professional organization representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Includes resource pages for various skin diseases including melanoma. 847.330.0230

Melanoma International Foundation (MIF): Provides support of melanoma programs for the prevention, early detection, and treatment of melanoma. 610.942.3432

Melanoma Research Foundation (MRF): MRF supports medical research for finding effective treatments and eventually a cure for melanoma. It educates patients and physicians about the prevention, diagnosis and treatment of melanoma and acts as an advocate for the melanoma community to raise the awareness of this disease and the need for a cure. 800.673.1290

Skin Cancer Foundation: The mission of The Skin Cancer Foundation is to reduce the incidence of skin cancer through the promotion of prevention, early detection, and effective treatment. 800.SKIN.490

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Thyroid Cancer

Thyroid Cancer Survivors Association, Inc.: A national non-profit organization advised by nationally recognized thyroid cancer specialists. Educates and supports patients and families through its web site, support groups, p

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Disclaimer:

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